All in the Body

An acquaintance with Myalgic Encephomyelitis, on telling a friend about her condition, was asked, almost reflexively “Do you really have ME or is it just depression?”  The same woman had to change doctor at her NHS practice recently (her regular doctor being on long-term sick leave).  The new doctor expressed great surprise that her condition had not been cured by anti-depressants (but was otherwise sympathetic).  These two incidents exemplify two of the main issues raised in Angela Kennedy’s excellent book: firstly that chronic illnesses for which no clear medical cause is identifiable are often classed by medical practitioners as psychogenic (psychosomatic), and secondly the detrimental effects such classification can have on the patient’s treatment, not only medically, but by society at large.

To a large extent this work is a literature review, or perhaps a meta-analysis, of existing and previous research.  Which is all to the good, as a large amount of the extant results seem to have been misreported and misinterpreted by the (popular and scientific) press.  Although Angela focuses on ME/CFS, the conclusions are applicable to a much wider range of conditions.  Of interest is the fact that (or so it seems to me), a disproportionate amount of the case studies, both historically and more recently, are those of women.  Ms Kennedy gives an interesting personal account of how her GP informed her in no uncertain terms that she was having a “hysterical pregnancy” when she attended the surgery after having completed a home pregnancy test.  Her ‘hysterical’ son is now a grown man!

The book begins by pointing out the fallacies associated with psychogenic explanations: the reason for a condition being “medically unexplained” is usually down to limitations with current medical knowledge.  Attaching such terminology to certain diseases can also lead to shutting down further avenues of investigation, often with severely detrimental results.  A convincing argument in the introduction is that: “The present lack of critical examination of this conjecture (that ME is a modern version of neurasthenia) is also not a reason to accept this conjecture: no scholarship has yet been performed to suggest CFS and ME are not caused by demonic possession, for example, but this should not mean therefore that they are caused by such, even if such a reason might be ‘persuasive’ to some.”

Ms Kennedy goes to discuss “problems of psychogenic explanations in action:” the beliefs that certain types of people get certain types of illness, with a particular emphasis on the diagnosis and labelling of people with ME.  The following chapter deals with doctors’ attitudes to such patients, often labelled as “heartsink,” containing some shocking examples of patients labelled as lazy, malingering and hypochondriac.

“Think yourself better” explores the dangers of CBT when put forward as a cure, rather than a coping mechanism for ME, whilst “Consequences of psychogenic explanations” looks into how such explanations can be widely damaging for the patient, both in the hands of the medical profession, as well as at the hands of society at large.

Angela concludes that the trend towards labelling illness as psychogenic is on the increase, and that this is a dangerous direction to be heading in: “(the realities of psychogenic explanations) are most often fallacious in their logic and informed by harmful ideologies.  They cause actual harm in many ways.”

This is a very significant book about a highly important aspect of medicine which has detrimental effects on many of us.  Angela Kennedy has taken what is evident in the literature and research, and reported it in a non-biased way, thus giving us access to serious evidence against the psychogenic theory of illness such as ME/CFS which has been ignored by many other publications, and certainly the popular press.

I advise anyone with an interest in ME, CFS, other neurological or fatigue-related illness, as well as those interested in the whole mind/body connection issue as concerns disease, to read this book.  It can be purchased from www.amazon.co.uk for £17.59.

Mary Tynan

Angela Kennedy Angela Kennedy is a social sciences lecturer and researcher at a number of universities in London, and author of numerous articles, papers and books in lay, professional and academic media over a 30 year career.

Get Your Own Art – for Free!

OwnArt

Own Art is an Arts Council England initiative which gives interest free loans to individuals, in order to make purchasing contemporary art and craft easy and affordable.  They are celebrating their 10th anniversary this year, and, as part of the festivities, have commissioned Turner Prize winning artist Jeremy Deller to create a digital animation.  This work, which will be based on that he did for the Venice Biennale 2013, is to be split into 10,000 stills that will be available to download as individual unique works of art.

To be one of the lucky 10,000, subscribe (anytime from now onwards) to The Space newsletter at http://www.thespace.org/artwork/view/wesit#.U5wnqyJwZeU.  Once you’ve confirmed your subscription, they will send you an email with a link to claim your work, which will then be downloadable from Monday, 7 July 2014.

The full animation will be premiered on screen on Saturday, 19 July, at both Westfield Stratford and Westfield London.

Own Art was created to inspire individuals to take their first steps and buyers and collectors of contemporary art and craft, as well as to assist the galleries they work with, along with their artists, to be more sustainable as businesses.  Customers can borrow from £100 to £2,500 interest free, and spread the cost of repayment over 10 months.  A quarter of the loan amount each year, on average, is to customers with an annual income of £25,000 or less.  Since the scheme began in 2004, it has financed in excess of £25 million worth of sales.

Jeremy Deller has been making art since the early 1990s.  He won the Turner Prize in 2004 for the documentary Memory Bucket, and his work covers subjects ranging from exotic wrestler Adrian Street to international fans of 1980s band Depeche Model.  He has exhibited widely throughout the world, and in 2013 represented Britain at the Venice Biennale.

For more information on Own Art visit www.ownart.org.uk.  You can find out more about Jeremy Deller at www.jeremydeller.org.